Kraig Klenke and the Klenke Bowlathon

 This is a picture of Kraig Klenke and his mom, Kris. (Unfortunately, I can't take credit for the photo.) Kraig had MPS II, Hunter's syndrome, and passed away October 26th.  Kris has been on the Board of Directors for the MPS Society for many years, including the years that I was also on the Board.  I was always inspired by her endless work for the society, on top of her 24/7 caretaking of Kraig.   We went to Kraig's funeral in Illinois, and went back this past weekend for the Bowlathon and a celebration of life for Kraiggy.  Several of the students in Mark's lab made the trip as well.  We had a good time bowling, visiting with friends, and raising money for MPS.  The Celebration was very nice as well as so sad.  Kraig lived an inspiring life, I always remember him best with his huge happy grin on his face.

Scenes from the bowlathon...

This is our friend Larry, who was also on the BOD, along with his daughter Helen.  Helen's sister has MPS IIIA, the same syndrome that Joe and Maggie had.  Larry and Allison drove down from Wisconsin, and it was great to see them again.  The MPS Family Conference will be in St. Louis this summer, and I am looking forward to catching up with the many families I have gotten to know through the years.